The Times Australia
The Times World News

.
The Times Real Estate

.

Everyone is talking about the NDIS – we spoke to participants and asked them how to fix it

  • Written by Mark Brown, Research Fellow, La Trobe University
Everyone is talking about the NDIS – we spoke to participants and asked them how to fix it

Last week’s budget revealed the rapidly escalating costs of the National Disability Insurance Scheme[1] (NDIS) and rekindled fears among people with disability about its sustainability.

The Albanese government is unequivocal in its support for the NDIS, but has also warned[2] more needs to be done to bring down costs.

As part of this effort, it has brought forward an independent review of the NDIS[3] to be co-chaired by former senior public servant Lisa Paul and former chair of the National Disability Insurance Agency (NDIA) Bruce Bonyhady. It will hand down findings and recommendations by October 2023.

The next year will be crucial for setting out the future path of the NDIS and participants in the scheme. Our new survey[4] shows Australians with disability are keen to see real change.

Read more: The budget sounded warnings of an NDIS 'blow out' – but also set aside funds to curb costs and boost productivity[5]

Voices that matter

The Summer Foundation – supported by People with Disability Australia – recently conducted a national survey of NDIS participants[6]. We asked people with disability or their families what works well with the scheme and what needs to be changed.

The 477 survey respondents included those with a wide range of disabilities, ages and locations around Australia.

Previous research drew on in-depth interviews[7] and found that despite gratitude for the NDIS, participants have lost trust and confidence in the NDIA, which administers the scheme.

The new survey provides hundreds of examples of how the NDIS has enabled a wide range of participants to achieve important and transformative outcomes. The survey also provides rich data that illustrates the stress and unpredictability of navigating the NDIS. There are insights into how the scheme could be much more efficient and simpler for users to navigate. As one told us:

The concept of NDIS is great. The implementation and delivery needs to be improved.

Jumping through hoops

Survey responses indicate the range of issues participants want addressed.

Participants take issue with the reports and assessments they are asked to obtain as part of funding plan reviews. The NDIA asks participants to submit evidence from health professionals about their disability and needs. But participants believe NDIA staff often do not read, understand or factor in this evidence. This feels like a waste of time, effort and money.

The recommendations of long-term experts involved with a person [shouldn’t be] second-guessed or discarded by an inexperienced and unfamiliar NDIA officer (no matter their good intentions).

The national survey asked three main questions.

Not everyone can be an advocate

Participants report NDIA staff lack expertise and experience in disability issues. This puts a burden on the participant or their family to educate the agency.

Those with the skills, knowledge, time and ability to self-advocate may eventually succeed in getting a suitable funding plan, but others with less capacity give up.

Participants say NDIA staff should receive more training, or have their expertise better matched to who they are working with; hiring more people with disability experience was also suggested. Here are some of things participants shared:

Planners, interviewers [should] know and understand the disabilities they are writing about fully – no one understands deaf. They keep trying to ring me – ughhh I am deaf.

I am very grateful for the NDIS and what it does. Although it is working well for me personally, I am appalled at how complex, time-consuming and sophisticated I had to be to get what I have.

The funding has been difficult to continue to fight for each year, having to prove lifelong disability that will never improve. However the funds received and the flexibility of using the funds has been so important.

Read more: 'They treat you like a person, they ask you what you want': what NDIS participants value in support workers[8]

Wanting better

Participants say the NDIA lacks the fundamental elements of contemporary customer service, let alone an agency designed to engage with people who may have severe cognitive and communication limitations.

Participants’ frustration with the NDIS stems in part from knowing how well the scheme can work, and that it does work well for some people some of the time.

The current design of the NDIS is unnecessarily bureaucratic[9] in a way that demonstrates a lack of trust[10] in the competency of participants to make decisions about their lives.

three people gather, one reading a document
NDIS minister Bill Shorten reads the survey with researchers. Summer Foundation, Author provided

Participants described many ways in which the NDIS allows them to participate socially and economically and make the most of life despite their disability.

When it does work, it’s the people who listen, the people who treat people with disability as humans, not as a burden. The people who recognise they are handling a person’s life, rather than managing an account.

My NDIS supports allow me to work for the first time in full-time ongoing employment in the open employment market. Prior to the NDIS supports that I receive, this would not have been possible.

Our daughter volunteers at three local organisations with the help of support workers. She is supported to go shopping for herself. She attends a centre-based program for socialising and fun. She is receiving regular overnight support to help increase her independence from us, her parents.

Getting to work

Many NDIS participants have untapped potential to work and make other valuable contributions to society. A new NDIS 2.0[11] needs to see the agency working in partnership with people with disability to enable economic and social participation and deliver real jobs for people with disability. Better connecting NDIS participants to job opportunities and reforming disability employment services may be part of the solution to increasing work participation.

The government’s pilot scheme announced this week[12] has this focus. However, our survey suggests many participants cannot even begin to explore employment because their basic daily supports and housing are not secure in today’s NDIS.

Redesigning the NDIA to be an efficient and cost-effective administrator that consistently delivers great outcomes for NDIS participants will be a major challenge.

Giving a voice to a broad range of participants and their families – who have a wealth of expert knowledge on what works well and what needs to be changed – is crucial to transforming the scheme. The NDIS review is a once-in-a-generation opportunity to get the scheme right, stem the current waste of public resources, and transform the lives of half a million Australians.

Read more: NDIS plans rely on algorithms to judge need – the upcoming review should change that[13]

References

  1. ^ costs of the National Disability Insurance Scheme (www.afr.com)
  2. ^ warned (www.abc.net.au)
  3. ^ independent review of the NDIS (www.ndisreview.gov.au)
  4. ^ new survey (assets.summerfoundation.org.au)
  5. ^ The budget sounded warnings of an NDIS 'blow out' – but also set aside funds to curb costs and boost productivity (theconversation.com)
  6. ^ survey of NDIS participants (assets.summerfoundation.org.au)
  7. ^ drew on in-depth interviews (theconversation.com)
  8. ^ 'They treat you like a person, they ask you what you want': what NDIS participants value in support workers (theconversation.com)
  9. ^ bureaucratic (www.smh.com.au)
  10. ^ demonstrates a lack of trust (www.scribd.com)
  11. ^ NDIS 2.0 (ministers.dss.gov.au)
  12. ^ pilot scheme announced this week (www.theguardian.com)
  13. ^ NDIS plans rely on algorithms to judge need – the upcoming review should change that (theconversation.com)

Read more https://theconversation.com/everyone-is-talking-about-the-ndis-we-spoke-to-participants-and-asked-them-how-to-fix-it-193524

The Times Features

From Classic to Contemporary: 5 Timeless Costumes for Any Party

When it comes to dressing up for a costume party, you want to choose something that is not only fun but also memorable. Whether you're attending a Halloween event, a themed gathe...

Action Figures as Art: The Growing Trend of Custom Figures and Modding

Action figures have long been regarded as collectible items, valued by enthusiasts and fans for their connection to popular culture. However, in recent years, a growing trend has...

The Ultimate Guide to Securing Grants for Your Small Business in Australia

Running a small business in Australia comes with both opportunities and challenges. While it can be rewarding, funding your business through the early stages or periods of growth...

Men’s Guide to Styling Suits with Sweaters for the Ultimate Winter Look

Winter brings a unique set of challenges when it comes to maintaining a sharp and stylish wardrobe. While suits are a staple of a well-dressed man’s closet, staying warm during t...

Discover the Charm of a Girl's White Dress

Key Highlights Timeless elegance: White dresses feel pure and have classic charm. They are perfect for many types of events. Versatile styles: You can pick from lace, embroid...

Top Medical Grade Red Light Therapy Devices in Australia

Key Highlights Lumitter™ has advanced red light therapy devices that combine new ideas with wellness. Red light therapy helps lower pain and swelling and boosts skin health. ...

Times Magazine

The Essential Guide to Transforming Office Spaces for Maximum Efficiency

Why Office Fitouts MatterA well-designed office can make all the difference in productivity, employee satisfaction, and client impressions. Businesses of all sizes are investing in updated office spaces to create environments that foster collaborat...

The A/B Testing Revolution: How AI Optimized Landing Pages Without Human Input

A/B testing was always integral to the web-based marketing world. Was there a button that converted better? Marketing could pit one against the other and see which option worked better. This was always through human observation, and over time, as d...

Using Countdown Timers in Email: Do They Really Increase Conversions?

In a world that's always on, where marketers are attempting to entice a subscriber and get them to convert on the same screen with one email, the power of urgency is sometimes the essential element needed. One of the most popular ways to create urg...

Types of Software Consultants

In today's technology-driven world, businesses often seek the expertise of software consultants to navigate complex software needs. There are several types of software consultants, including solution architects, project managers, and user experienc...

CWU Assistive Tech Hub is Changing Lives: Win a Free Rollator Walker This Easter!

🌟 Mobility. Independence. Community. All in One. This Easter, the CWU Assistive Tech Hub is pleased to support the Banyule community by giving away a rollator walker. The giveaway will take place during the Macleod Village Easter Egg Hunt & Ma...

"Eternal Nurture" by Cara Barilla: A Timeless Collection of Wisdom and Healing

Renowned Sydney-born author and educator Cara Barilla has released her latest book, Eternal Nurture, a profound collection of inspirational quotes designed to support mindfulness, emotional healing, and personal growth. With a deep commitment to ...

LayBy Shopping